Rare Disease? Meet Shannon a superstar human! Shannon was diagnosed with a rare vascular compression syndrome known as Median Arcuate Ligament Syndrom. MALS causes severe pain after eating, drinking, exercising, and the inability to take deep breaths. Shannon shares her wisdom on how to suffer well and how to find the light in the darkness!
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Instagram: @Leias_kids @leiatherese @jace_tough2gether
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